DA-ADV-205:
Danielle Whitfield-Osei

Was It Really His Choice?

Danielle Whitfield-Osei questions whether her brother Marcus, who had Down syndrome, truly understood his donor registration. The advocate must acknowledge the family's protective history, address capacity concerns respectfully, and reconnect the conversation to Marcus's values rather than relying on legal authority alone.

Through the challenges of disability-related distrust, guardianship, and questions about decision-specific capacity, the primary learning objectives are to:

LEARNING OBJECTIVES
  • Address disability-related trust concerns respectfully
  • Differentiate capacity from guardianship
  • Provide specific, factual reassurance
  • Reconnect the registration to the donor's values
  • Avoid overly legalistic or persuasive communication
Program

Donation Advocate

Target Audience

Donation Advocates

Scenario Type

Family Member

Clinical Context

DCD

Registry Status

Registered

Difficulty

4

Experience Level

Advanced

Emotional Intensity

High

Conversation Style

Advocacy, Capacity, Family Conflict

Essential
Sim
Elements

Meet the simulation speaker

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Danielle Whitfield-Osei

Family member, Sister
Danielle Whitfield-Osei questions whether her brother Marcus, who had an intellectual disability and a public guardian, truly understood his donor registration.
PO Box 1409, Erie, CO, 80516-1409
Phone number: 866-433-4276
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